About Myeloma Action Month
What is Myeloma Action Month?
This year, Myeloma Action Month occurs during the entire month of March. We ask myeloma health care professionals, patient advocates, and caregivers to join us and take action to empower patients and arm them with knowledge. Being aware of this rare disease can guide patients to ask their doctors to consider myeloma as a possible cause for their symptoms, leading to earlier diagnosis.
When is Myeloma Action Month?
Myeloma Action Month happens every year during the entire month of March.
When and how was Myeloma Action Month established?
In 2009, the International Myeloma Foundation was the first organization to declare March as “Myeloma Awareness Month” (MAM). Since that time, we have elevated our program to “Myeloma Action Month.”
Is Myeloma Action Month a registered charity?
Myeloma Action Month is coordinated by the International Myeloma Foundation, a 501(c)(3) registered non-profit based in North Hollywood, CA.
What is the International Myeloma Foundation?
Founded in 1990, the International Myeloma Foundation (IMF) is the first and largest foundation focusing specifically on multiple myeloma. The Foundation’s reach extends to more than 525,000 members in 140 countries worldwide. The IMF is dedicated to improving the quality of life of myeloma patients while working toward prevention and a cure by focusing on four key areas: research, education, support, and advocacy.
What is/are the official color(s) of Myeloma Action Month?
The official colors of Myeloma Action Month are burgundy, blue, and white– the same colors you see on the MAM logo.
What is the theme for this year?
The 2019 Myeloma Action Month theme focuses on Myeloma Warriors – individuals surviving with the disease, supporting loved ones, or helping to find the cure. The campaign’s hashtag is #myelomawarrior. When this hashtag is used to share stories on Twitter, Facebook, Instagram, and Pinterest, these #myelomawarrior posts will stream to the IMF’s “Wall of Warriors” on this website.
Who can get involved?
Anyone and everyone.
We’re counting on everyone’s support: patients, their families, their caregivers, their health-care providers, and researchers striving to find a cure. We are counting on all individuals like you to raise awareness. As one of our founders said, “One person can make a difference, but two can make a miracle.”
How can I get involved?
In whatever way that you can spread the message of Myeloma Action Month to your family, friends, colleagues, community, media, and governments will help us reach as many people as possible to learn about multiple myeloma.
- You can download the Myeloma Action Month Patient Action Letter to send to health-care providers. Written by Dr. Brian G.M. Durie, IMF Chair of the Board, the letter spells out potential myeloma symptoms and red flags of the disease.
- You can share your story as a #myelomawarrior on our website.
- You can share photos, quotes, and inspirational messages on your social media sites, using the hashtag #myelomawarrior.
Where can I buy Myeloma Action Month merchandise?
Visit our online store at for official IMF-sponsored Myeloma Action Month merchandise. This merchandise features the official #myelomawarrior logo on such items as coffee mugs, pins, baseball caps, sweatshirts, t-shirts, and more.
What is the social media activity for 2019?
We encourage you any of these FREE downloadable graphics on your social media channels. We do ask, however, that you do not modify the graphics in any fashion. Always remember to share them with the hashtag #myelomawarrior.
How can I get on the Wall of Warriors? / Why am I not on the Wall of Warriors?
The Myeloma Action Month “Wall of Warriors” features social media activity. To make sure you get yourself featured on the Wall of Warriors, don’t forget to include the official Myeloma Action Month hashtag #myelomawarrior in your post.
Using our materials
May I use the materials available on the website?
Of course, our materials are all provided free to download and use. In fact, we encourage it. The only thing we ask is that you do not modify these materials in any fashion. Also, when possible, please link to our website and/or give us credit. And of course, use the #myelomawarrior hashtag whenever possible.
If I use the Myeloma Action Month materials, do I need to mention your website or logo?
Yes, we would appreciate if you would link to our website and acknowledge us as the creators of the material. Also, we kindly ask that you not modify our Myeloma Action Materials in any fashion.
Can I add the logo of my organization to the materials, for example on social media graphics?
We kindly request that you not modify our Myeloma Action Materials in any fashion. We also ask that you keep the Myeloma Action Month logo and website address without making any changes to the way it currently appears.
I want to donate, but don’t have a credit card or PayPal account. Is there another way?
Thanks for considering donating to Myeloma Action Month. To do so, click HERE.
If you would rather send in a donation via mail, please do so at our address
12650 Riverside Drive, Suite 206
The International Myeloma Foundation
12650 Riverside Drive, Suite 206
North Hollywood, CA 91607-3421
I am seeking financial help / funding. Can you help?
Unfortunately, the IMF does not provide direct monetary assistance to patients, but we do have information about financial resources that may be available to you. You can view a list of co-pay assistance programs here or contact our InfoLine at 1-800-452-CURE (2873) in the US/Canada, or globally at 1-818-487-7455. You may also email them with your inquiry at InfoLine@myeloma.org. You can also learn about how to navigate the Affordable Care Act.
Questions about multiple myeloma
What is multiple myeloma?
Multiple myeloma is a cancer of the bone marrow plasma cells, white blood cells that make antibodies. A cancerous or malignant plasma cell is called a myeloma cell. Myeloma is called “multiple” because there are frequently multiple patches or areas in bone where it grows.
How common is myeloma?
Multiple myeloma is the second most common blood cancer. According to the National Cancer Institute SEER data, an estimated new 30,770 new multiple myeloma cases have been diagnosed in the U.S. in 2018.
Additionally, the American Cancer Society estimates about 32,110 new cases will be diagnosed in 2019. As of 2015, an estimated 124,733 people were living with myeloma in the U.S. (NCI SEER data).
Who is at risk for developing multiple myeloma?
Men are 1.5 times more likely than women to develop multiple myeloma. The disease is most frequently diagnosed in 65-74–year-olds, and it is twice as common in people of African descent.
Learn more at our main website myeloma.org.