I was diagnosed by a blood test in April 2011 at age 63 I was told I was barely Stage 1. I did a non-conventional protocol for a year but it didn’t work. In 2012 I did 6 months of revlimid/dex/velcade with minimal side effects. I went off drugs for about 6 weeks and had my hip replaced (no connection to the myeloma). I was in complete remission in February but then the M-spike blipped up and I went back on Velcade for a few months.
I have been in complete remission since May 2013, just taking 10 mg of revlimid (3weeks on, 1 week off) and a baby aspirin. My only problem is bouts of diarrhea. I also get an infusion of Zometa once a month but I am planning to discuss discontinuing this as I have been on it for almost 2 years and skeletal x-rays show no lesions.
I do lots to keep my bones strong and the less drugs the better for me. I lead a happy, healthy life and I forget sometimes that I have cancer. I share this to give newly diagnosed patients hope – each case of myeloma is so different. Take care of yourself beyond the drugs with good nutrition, alternative treatments, meditation, hydrotherapy, acupuncture and massage. I also have a wonderful therapist who guides me to live mindfully every day. I wish you wellness and send lovingkindness to all who see this.
– Kathy T.